I combine creativity with patient advocacy.
Hello, I’m Tania!
Sarcastic, passionate, creative and a head full of ideas. I write to clear my mind, draw to process what I feel, and craft to make life a little less messy.
Living with Multiple Sclerosis has reshaped how I see life, healthcare, and the world around me. As a young Latin American woman with a chronic condition and invisible disability in Austria, I've learned that who we are is never just one thing, it's all the layers together.
Crafts and Illustrations
My illustrations bring together my lived experience with a chronic condition, and all my layers of identity, shaped by the way I see and move through the world.
Army of Ants
Army of Ants is my creative take on living with Multiple Sclerosis, built on the belief that small voices can create powerful change. Through a patient’s perspective, it transforms the realities of Multiple Sclerosis — invisible challenges, daily victories, and moments of adaptation — into stories of resilience, awareness, and connection.
Patient advocacy
I advocate for greater representation, inclusion, and equity in the Multiple Sclerosis, chronic condition, and disability communities. I collaborate alongside organisations and people with lived experience to make that happen.
Identity has many layers, and so does the patient experience. That's why my work is rooted in intersectionality.
My goal isn't just to represent the patient perspective. It's to help build environments where people with chronic condition and disabilities are equal partners in research, healthcare, and decision-making.
Collaborations and Advocacy Work
Episode: Interview with Tania Pilz
Podcast MS Perspektive with Nele von Horsten
Tania Pilz shares her experience living with Multiple Sclerosis, her path to diagnosis, and how she turned her journey into advocacy. She discusses building a supportive MS community, promoting inclusion, using art to express herself and empowering others through her personal story.
Episode available in English and German.
Episode: The Power of Community
Let’s Talk MS a Podcast by the European MS Platform
Alongside with Host Simina Peterfi, the episode introduces Tania Pilz, a youth advocate and member of the EMSP Young People’s Network, joined by Amy Thompson founder of MS Together.
Episode: Invisible Battles: The Unseen Realities of Neurological Conditions
The Brain Health Matters Podcast by EFNA
In this episode, we’ll hear from Tania Pilz, a young woman from Austria living with Multiple Sclerosis, and GraceMarie Bricalli, President of the European ME Alliance, who will share insights into the frequently-overlooked burden of Myalgic Encephalomyelitis (ME) and the urgent need for recognition and support.
Other expertise:
Inclusive Storytelling, Inclusive Design and Communication, Disability Inclusion, Disability Leadership, Intersectionality
I choose to tell my own story.
The best impact happens together.
Got an idea you want to share with me? I see every connection as an opportunity to learn from one another.
Can’t wait to hear from you!